Amy Brackin

I am honored to be able to give every month and to the birthday fundraisers! When my heart is breaking for what they are going through to be able to donate I feel like I’m helping in the one way I can other than prayer!! 

My donation is important because research is going to be the answer for the future cure. I do believe a cure is coming and it’s because the community has rallied around these precious children and were determined to keep giving as long as it was needed.

I’m hearing about breakthroughs in research! Jessica shared with us just this week about a possibility of drug therapy that Dr. Lewis feels in coming soon. Everyone who has given to the foundation can say they had a part in this!! It takes a village and Kruz and Paizlee have the best ever!! I believe every person that gives truly loves them!!

Kruz has the sweetest spirit and is so compliant. He knows what he can have and is so understanding. His love for his mom is so evident. Paizlee is FULL of energy and loves life!! I love watching them change and embrace the things they do get to enjoy. I can’t wait until this world is opened up to them!! School, birthday party, church with all the other kids......