Day -16 | Stem Cell Transplant
Today he’s been busy to say the least. Our doctors came in today, including Dr. Lewis -(SIOD researcher), with lots of information and learning about Tcells with Dr. Bertania -pictured below.
Kyle signed consents for Kruz, I had more consents to sign for being a donor, we both had to sign for this procedure to be studied in the SIOD research lab, specifically T-cells deficiency that’s apart of SIOD causing the low immune systems - Really cool- This is future & present SIOD patients treatment plans unfolding.
Kruz did more “work up” today including:
CT SCAN ✅
Tomorrow they will finish some of the work up including Echo, hearing and vision & more labs.
Change in “The Schedule” instead of Hemo port being placed tomorrow, it will be Wednesday the 15th at 1 PST- I’ll edit schedule as it will probably change often, same process just may be plus or minus a day on Kruz’s end.)
It’s weird for leaving tonight.
I’m a control freak.
I am not ashamed to admit it.
Before I left I did wipe the room down again, including the bath & toilet with hospital grade wipes.. and I may have stopped by the nurses desk to triple check they have the right recipe for his formula...
but in reality.
Daddy’s got this.
He’s so patient, he plays, he does anything to make Kruz smile...and he’s made “boy time” something cool for him and Kruz-man.
Kyle even said - this is the one thing he CAN do to help Kruz through the process and he’s not leaving his side.
Me and sister are back at RMH & can’t wait to see the boys bright and early ☀️