Day +29 | Stem Cell Transplant
[Quick updates: Kyle was trained in central line care today & doing heprin flushes. Kruz received blood & got to skip a day in HD since IV nutrition is done, he was at dry weight. Waiting to see plan on going back to PD & getting HD catheter out.]
SO, here we go. I’ve refrained from opening his binder. His medical history... his old labs... his old life. I didn’t want to look simply because I didn’t want to get my hopes up. I’m so used to let downs. I’m so used to taking good news but not celebrating because I didn’t know how long it would last, that I just would hold it all in. That’s real y’all.
Today, I came in and opened his old labs. I happened to grab one from Aug 2018.
I lost it.
We knew then everything was “low”, we knew then Kruz was up for this clinical trial, but seeing these numbers- well that got me. I realized we were so thankful then just to have some numbers on the paper.. it’s surreal seeing the counts now.
I honestly never thought I would see these numbers on paper. I had faith something would happen but I didn’t know what, I didn’t know when and I couldn’t SEE it.
Well, I saw it today.
[Normal WBC range is 5.5-15.5]
WBC’s in Aug: 2.08
WBC’s today: 15.2
[Normal ANC range is 1.5-8.5]
ANC in Aug: 1.11
ANC today: 11.95
Only God. There is no other explanation. He placed us here with the one and only doctor in the world that could help us, especially being on dialysis, on top of his disease. I text her tonight and sent pictures of our old labs, I know we have a ways to go, but all I could say is thank you. Because of this type of stem cell transplant my children can live to see a cure. Not just a treatment. Not just more transplants. A CURE. I know that. I believe that. And I claim that.
A Thankful & blessed momma 💛