Day +35 | Paizlee Davenport Stem Cell Transplant
Chimerism came back at 86%, up from the first one we got back 12 days ago, which was 70%. Dr. Alice said it’s still early. Come on 100%!! 🙏
Hemoglobin- 8.8 (I’m sure she will get blood with HD soon)
ANC (absolute neutrophil count)-2.26👍🏼
Monocytes (turn into neutrophils)- 0.95👍🏼
Lymphocytes (T cells & B cells)- 0.14 👍🏼
Paizlee is following the same pattern as Kruz, I don’t know if you remember all of Kruz’s belly pain... but it all had to do with HD & the GI issues, we had to do a scope with Kruz to rule of GVHD, and we’re having to probably do the same with Paizlee. Possibly Monday.
We just have to rule out her tummy issues aren’t coming from GVHD (graft vs host disease). If it’s GI issues, we can handle that, we’ve dealt with this for years with Kruz. Our children are so sensitive to change. And post transplants comes with hurdles to get them back in a good place nutritionally.
Kyle & I had a meeting with kidney team and stem cell team today, expressed our concerns, and hopefully we have a plan now and goals to hit for discharge.
They have stopped all formula feeding, gave pedialyte the past two days and will start introducing a new, easier formula feed soon to see if she can tolerate it better. Chemo really disrupts the digestive tract, so it’s a process. She tries to eat food, chemo just destroyed taste buds and being in kidney failure destroys appetite, but she’s trying to eat. She just doesn’t eat enough to sustain her so we’re figuring out what calorie formula she can tolerate through her g-tube feeds.
She’s still her silly self 💕