Apr
27
11:00 AM11:00

Chili Cook-Off and Dessert Bake-off

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April 27th 11:00AM-2:00PM at Columbia Cottage

Bring your best chili or dessert and help us raise money for the Kruzn for a Kure Foundation!

Ready to eat?
Taste the competition and vote for your favorite dish with a donation!
The dish in each category with the most donations wins
a trophy and bragging rights!

Want to compete?
$50.00 fee per entrant* - cash or check made payable to Kruzn for a Kure Foundation
Mail payment to Columbia Cottage c/o Kerri White or bring it the day of competition!


*100% of entry fees and donations will be donated to Kruzn for a Kure Foundation.

Kruzn for a Kure’s mission is to spread awareness about Schimke Immuno-Osseous Dysplasia, a rare and fatal form of dwarfism. They are dedicated to finding a cure, and showing support to those who have been diagnosed and battling rare diseases, while also fundraising to support research at Stanford University.

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May
18
8:00 AM08:00

MOTORCYCLE RIDE

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Charity Dice Run for Kruzn For A Kure Foundation & a chance to Tour the Shoals Area with some famous attractions and free tours only a $25.00 donation and $10.00 for extra roll cards. This event is hosted by the Brethren Chapter of the Alabama Widows and Sons.

Schedule · Saturday, May 18, 2019

  • 10:00 AM - Leave Hatton Lodge

  • 10:30 AM - Dawson Distillery

  • 12:00 PM - Natchez Trace Harley Davidson

  • 1:30 PM - Tom's Wall

  • 3:00 PM - Elk's Lodge Florence

  • 4:00 PM - Coach's Steakhouse

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Jun
23
8:00 AM08:00

9th Annual Summer Scamper

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On Sunday, June 23, we are participating in the 9th annual Summer Scamper to raise funds for Schimke Immuno-Osseous Dysplasia research at Lucile Packard Children’s Hospital Stanford! 

Please join us virtually or at Stanford on race day! How do you participate virtually? Simply join our team & run in your town on race day.

It was a 1 in 80 million chance Kruz and Paizlee would have SIOD. Schimke Immuno Osseous Dysplasia (SIOD) is a multisystem disorder that is inherited in an autosomal recessive pattern. Kruz and Paizlee are 2 out of 5 SIOD cases in the United States, making them the first siblings with this condition in the country. The life altering disease expresses itself in many ways, first being kidney failure. Kruz (and Paizlee) will undergo a kidney transplant. Kruz is already on dialysis and Paizlee is being monitored and treated by Stanford nephrology team now. Another way SIOD expresses itself is T cell deficiency. Kruz was recently the first SIOD patient to have an allogeneic hematopoietic stem cell transplant here at Stanford. Paizlee is undergoing evaluation for her stem cell transplant in the near future. SIOD will involve transplants such as kidney, stem cell and even hip reconstruction due to the dysplasia, but the ultimate goal of research would be reversing the SMARCAL1 mutation or a drug therapy that causes other havocs of the body such as stokes, seizures, and chance of cancers.  Kruz and Paizlee are trailblazers in SIOD research. Kruzn For A Kure Foundation is providing life saving research funding to allow these children to have a treatment plan and a change at longer life living with such a devastating disease. For the first time, SIOD research has a promising chance to actually cure this incurable disease at Stanford. We strive everyday to not only give Kruz and Paizlee a promising life, but the other children all over the world a chance as well. Continued funding is paramount for such an extremely rare condition. Your support, saves precious lives.

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Lantern Release
Jul
15
6:00 PM18:00

Lantern Release

The Kruzn for a Kure Foundation will be hosting a lantern release to send our prayers and wishes up for the Davenport family before they travel to California! Along with celebrating Kruz's 5th birthday!

Lanterns will be sold at the event and send off will be at dusk.
There will also be a table of KFK merchandise for sale.

Don't worry! If you can't attend you can purchase a lantern and leave a message here ---> http://bit.ly/LanternRelease

Since we will also be celebrating Kruz's birthday we ask for NO GIFTS.


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