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Family Fights for Cure for Their Kids' Fatal Dwarfism Diagnosis

Jessica and Kyle are fighting to find a cure for a rare fatal dwarfism that both their son and daughter have. They join The Doctors to share their brave and heartbreaking story about trying to beat the seemingly impossible odds facing their family.

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Against all odds: Stories of survival

Kruz and Paizlee Davenport have a rare and fatal disease called SIOD.

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Northwest Alabama continues to rally around children diagnosed with rare disease

MUSCLE SHOALS, Ala. - It's not often that you see students and teachers wearing hats to class at Muscle Shoals Middle School.

But on Tuesday, they did as a sign of support for Kruz Davenport. Continue reading….

Area schools support Kruz’n for a Kure Foundation with a hat day fundraiser

The nonprofit Kruz’n for a Kure Foundation is hoping to raise money through local schools’ participation in KFK Hat Day. On Tuesday, February 5, students and teachers will be able to donate $1 to wear a hat during school. Continue reading…


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Alabama boy with rare disease will get 'superpowers' during upcoming surgery

Updated Jul 10, 2018; Posted Jul 10, 2018

As he nears his fifth birthday on July 16 - the third consecutive one to have a dinosaur theme - Kruz Davenport has no idea that he has an extremely rare and fatal disorder with a life expectancy of nine to 11 years.

Click here to read the full article.


How two Alabama toddlers with a rare disease could capture Donald Trump's attention

Posted Mar 30, 2017

On Tuesday, the Chronicle of Philantrophy released a list of the top 10 organizations that their readers said Donald Trump should donate his salary to. 

There were the usual suspects -- St. Jude's Children Hospital, Cystic Fibrosis Foundation and the American Civil Liberties Union -- but at No. 3 was Kruz'n for a Kure, a Muscle Shoals non-profit that was formed less than a year ago.

How did Kruz'n for a Kure make the list -- and how has it reached so many people?

It has everything to do with two parents who are desperate to give their kids a good, long life -- and a community that has bonded together to support two vivacious toddlers. Click here to read the full article.

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Raising money to live with a rare disease now twice as important to Shoals couple

Posted 9:55 pm, October 2, 2016, by Jerry Hayes, Updated at 10:41pm, October 2, 2016

WHNT 19 NEWS

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MUSCLE SHOALS, Ala. - A Muscle Shoals couple is sharing their little boy's story to raise awareness about a life threatening disease. But it recently became twice as important.

Kruz Davenport came into the world a little early and he had a rough start. He only weighed 3 pounds and 6 ounces when he was delivered by emergency cesarean section after his heart stopped beating. His mother Jessica says, “He’s a miracle to be here. He wasn't breathing when he came out. They did CPR on him. He got sent to the NICU in Huntsville for a month to grow.”.....click here to view the full report


Alabama siblings are 2 of 6 people in the U.S. fighting rare disease

 

"It's a parent's worst nightmare. This summer, a family in Muscle Shoals found out her son and daughter have the same rare disease.

It's so rare that there are only six confirmed cases in the U.S., which includes Kruz and Paizlee Davenport. 

Kruz, 3, and Paizlee, 1, have the energy of any child but inside they're fighting a deadly battle..." continue reading


Crimson Tide football players help two Alabama toddlers facing life-threatening disorder

Kruz Davenport, 3, meets a Crimson Tide football player as he and his family work to spread awareness of his life-threatening genetic disorder, a rare form of dwarfism.

Kruz Davenport, 3, meets a Crimson Tide football player as he and his family work to spread awareness of his life-threatening genetic disorder, a rare form of dwarfism.

Kruz Davenport is a tiny 3-year-old with some big friends.

He calls them his "football friends" and met them a few weeks ago when he and his parents, Kyle and Jessica Davenport, traveled to Tuscaloosa to meet University of Alabama football coach Nick Saban and members of the Crimson Tide football team.

Kruz got to sit at Coach Saban's desk and play with Saban's glasses. He visited the workout room, where he craned his neck upward to see the huge football players as he handed them bottles of Gatorade and t-shirts emblazoned with the words "1-in-3 million."

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